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“太空没重力,我就和别人一样,可以在太空中自由翱翔”
来源:21英语网    日期: 2021-09-07
9月2日,北航迎来了第一名2021级本科新生邢益凡。他在父母的陪伴下,提前入住校园爱心宿舍。

 图源:北京航空航天大学微信公众号

邢益凡今年18岁,体重却仅有18公斤。6个月大时,他被确诊为LAMA2-相关先天性肌营养不良(渐冻症的一种)。

他凭借顽强的意志,常年与病魔作斗争,在学习上创造了一个又一个让人惊叹的成绩。中考时,邢益凡以全校最高分,考入吉林市第一中学;今年高考,他又以645分的成绩考入北京航空航天大学。

这,是一场人生的逆袭。

图源:北京航空航天大学微信公众号

Xing Yifan and his parents were thrilled to learn that he had been admitted to Beihang University with a score of 645 out of a possible 750 points in this year's national college entrance examination, or gaokao.

It would take most high school graduates great effort to score that high.

But the challenge for 18-year-old Xing was greater, as he was born with congenital muscular dystrophy, or CMD, a group of disorders characterized by muscle weakness and problems with the eyes and central nervous system.

据《江城日报》报道,2003年,邢益凡出生在一个普通的工薪家庭。

从出生那一年开始,疾病就始终伴随着他。邢益凡爸爸妈妈带孩子辗转省内外十多家医院检查,各大医院束手无策,只能一次又一次地做肌肉活检。孩子那撕心裂肺的哭声,让邢家人想起来就忍不住落泪。

2004年,辗转多家医院、刚6个月大的邢益凡在北大医院儿科确诊为LAMA2-相关先天性肌营养不良,这是一种罕见的因LAMA2基因突变导致的先天性肌营养不良亚型。那个年代,医生对这个疾病了解很少,更谈不上治疗,甚至连有针对性的康复训练都很困难。带着诸多遗憾,父母只能带着他回到家乡。

不少人劝邢家人,趁着年轻再要一个孩子吧。可邢爸爸邢妈妈觉得,邢益凡就是降临到他们
身边的天使,虽然他的“翅膀”折断了,但这不该成为放弃他的理由。他们给邢益凡起了个小名,叫毛毛。希望他像毛毛草一样,拥有顽强的生命力。

After the Spring Festival in 2004, the Xing couple took him to Beijing for treatment, and he was finally diagnosed with CMD at Peking University First Hospital.

When relatives and friends heard the news, they advised the couple to have another baby, but they were determined to pour all their love and care into their son.

"Yifan is an angel who came to our family," the father said. "He might have broken wings, but we will never give him up."

因为患病,邢益凡最大运动能力只能独坐,无法像其他孩子一样站立、行走。

活着,就已经要用尽全力,为什么还要学习呢?邢家人的想法很简单,邢益凡患了这样严重的疾病,被剥夺了走、跑、跳的权利,不能再被剥夺受教育的权利。在心智上,他不该被歧视。不学习,他就会成为社会的废人。

邢益凡并没有放弃生活,而是选择了让自己活得更有价值。学习对他来说不是负担,反而是他最大的乐趣。

图源:吉林一中微信公众号

由于严重脊柱畸形,邢益凡一堂课最多能坚持坐着听课30分钟,剩下15分钟只能躺着听课,全靠大脑想象老师讲的知识。

The young man's health continued to deteriorate. As a result of his condition, he is unable to grow much muscle, so his skeleton suffers from a lack of support and protection.

"He has never walked independently and can only sit against a support," said Xing Dacheng.

"And every 30 minutes, he has to lie down to rest, even in the classroom."

幸运的是,邢益凡从小学到高中都遇到了非常负责任的老师。小学班主任侯素云老师,6年来每天抱着邢益凡上下楼,没让他落下一节课。

在学习上,初中班主任杨卫红没有给邢益凡特殊待遇,英文书写不好照样评“D”。这激发了他不服气的性格,“别人能行,我也能行!”经过反复练习,邢益凡终于获得了“A”的书写评价。杨卫红想尽办法,让他发觉自己是个有价值的人。他的学习动力一点一点增强,逐渐在学习中找到了自信心。

图源:北京航空航天大学微信公众号

当年中考,邢益凡以615分的成绩考入吉林一中,这个从没参加过课外补习的孩子,考出了学校最好的中考成绩。

The condition has also deformed Xing Yifan's spine and fingers, making it difficult for him to write. "His teachers and principals from primary school to senior high school never refused him the opportunity of education and gave us lots of help," his father added.

Hou Suyun, head teacher at Xing Yifan's primary school, carried him up and down stairs during the six years he spent at the school.

Yang Weihong, head teacher at Xing Yifan's junior high school, gave him extra care but subjected him to the same strict academic requirements as his classmates.

"I tried everything I could to stimulate his desire to study, hoping to give him more confidence," Yang said. "I also hoped he would discover his own sense of worth."

Yang's methods worked. Xing Yifan got the highest score in his school for the senior high school entrance examinations in 2018.

备战高考期间,邢益凡用仅剩一点儿肌肉力量的双手,他完成了一张又一张试卷,一天最多做了20多张,经常做到凌晨一两点,每天疲倦到沾床就能睡着。

去年九月,邢益凡在准备上床睡觉时不慎右臂肩关节骨折。在3个月的治疗中,因长期卧床和严重呼吸功能不全,他出现了坠积性肺炎。

在邢益凡因骨折缺席课堂的那段时间,学校还在教室里安装了摄像头,方便他远程听课。而令所有人意外的是,邢益凡再次重返课堂时,成绩不降反升。最终,他如愿参加并顺利完成了2021年高考,成绩优异,645分,并被北京航空航天大学录取!

图源:北京航空航天大学微信公众号

To prepare for gaokao, he studied even harder from the day he started at Jilin No 1 Senior High School. "He rarely went to bed before the midnight, especially in the third year," his father said.

In September last year, Xing Yifan suffered a fracture to his right shoulder and had to stay at home to recover.

A camera was set up in his classroom to allow him to follow lessons on his computer at home.

After three months, he returned, and to his teachers' surprise, had improved instead of falling behind his classmates.

今后,邢益凡将住进北航准备的爱心宿舍里,他的妈妈也将在这里照顾他。

谈起未来的学习和生活,邢益凡说:“听说大学生活很丰富,我希望认识更多的同学,也想参加丰富的活动。虽然也会有压力,但我一直都有心理准备,其实一路就是这么过来的。”

图源:北京航空航天大学微信公众号

小时候,邢益凡就有一个“航天梦”:“太空没重力,我就和别人一样,可以在太空中自由翱翔。”初中时,他听说了霍金的故事,立志要做中国的“霍金”,用自己的知识改变世界。

生活以痛吻我
我却报之以歌
邢益凡,祝福你!加油!

综合来源:中国青年报 中国日报 北京航空航天大学 吉林一中 江城日报




 
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